On their journey down south they were trying to spread awareness about infant screening for this disease. Currently only two states are required to screen for this disease. Although, nobody knows what could have been for sweet Anaya had she been screened, at least there may have been a glimmer of hope. Most children die within the first year after being diagnosed.
Unfortunately, getting to the sunshine was not in God's plan.
She passed away yesterday surrounded by her family who so obviously loved and adored her.
Her life may have been cut short but she has truly impacted many. I personally hope that her family continues to crusade in her honor so that other families will not have to go through what they did.
To read more about her story go to Healing Anaya.
R.I.P Anaya. May she be flying freely, seeing, hearing, and dancing in heaven under a rainbow of colors.
You have touched the lives of so many. May your memory continue to live on.